Wednesday, March 27, 2024

Understanding albinism




Understanding Albinism

Medical terms explains albinism as an inherited genetic condition that reduces the amount of melanin pigment formed in the skin, hair and eyes. This is why I do not have a brown skin, dark colored eyes and hair but both my parents have brown skin.  I am told that I have grey/blue colored eyes and I love them.

Caring For My Skin And Eyes

I went to a school that accommodated both partially sighted and blind people.  We were taught from a young age to always use/apply sunscreen with SPF 50 or a higher factor as the sun is very harsh to our skin. Adding to sunscreen I grew up wearing long sleeve shirts and a hat when I go to the sun.  I have a vivid memory when I was young I went to the river and laid on the sand the whole day although my mum refused.  In the evening I started getting huge blisters that took more than two weeks to heal.  Since then I knew and understood that I cannot be in the sun for fun.

Most people with albinism have a short eyesight, with my eyes there is a variance, one eye is strong and the other is weak.  I got my prescription spectacles in primary school.  Later on in life I moved to using contact lenses and I always wear my polarized sunglasses which assists with the sun rays.

Gratitude Note 

Thank you so much for taking your time to read. I cannot wait to share further exciting experiences with you.  Please kindly share this post with as many people as you can as it will help me reach out to the world.

Please feel free to contact me HERE

13 comments:

  1. Thank you for sharing.... Information is key to break stereotypes

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    1. I'm very grateful that we can share freely with the world... One day the stereotypes will fade away...

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  2. Hi Thandi. Thanks once again for this beautiful piece.

    I would like to know how did being unable to have fun in the sun impacted your childhood in terms of playing with your friends. Were you then mostly playing indoors or the sunscreen helped?

    I am so looking forward to more content

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    1. Dear Ntombi.... I'm a very adventurous girl... Running away to the river was so much fun but the consequences lasted longer... I still played with my cousins and other kids in the community but I knew that if they played in the sun I'd have to sit in the shade... Another way my cousins accommodated me was playing some games after 16:00 as the sun rays are not too strong anymore and then I would play along...

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  3. Thanks for the knowledge

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    1. It's a pleasure.. There more people get to read about albinism , then they will understand the dynamics....

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  4. Hi you are so brave ,keep it up I take it as awareness to people who gave birth to children with albinism.

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  5. Good evening.... Thank you for commending my bravery... This cuts across all aspects ... I do agree that parents who give birth to children with albinism need more support. Yes I am here to offer that..

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  6. Such informative stuff .keep it up

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    1. Thank you so much... We trying to change old ways...

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  7. Thank you sharing this. My nephew is 6 months old and I need to know the best body lotion and body soapstone use for him. His skin become dry and flacky and really want the baby to look as great as other kids like him. Thank you in advance

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    1. Hello there...
      Please visit a medical practitioner for a suitable recommendation...
      I use E45 and Eucerine and Dove soap..
      All the best..

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    2. Pls do not forget sun screen and a hat..🤗

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